[00:52] Man, quiet day today [00:53] yeah it is like that a lot [00:53] I did two testcases today [00:56] I had a recruiter call me and say "How are you doing today" to which I replied "Horrible, my health is in the shitter" [00:56] It took him off guard but he kept going anyway [01:00] Funny, the dude just called and I told him I need 2 or 3 days reote and possible whelchair accessable [01:00] remote [01:00] bah ... wheelchair [01:00] they're dumbfounded [01:01] I don't think they understand invisible disabilities either [01:01] no...most people don't [01:01] visible disabilities aren't well-accommodated either [01:01] and I'm so doped on my meds I'm just all up in them about it [01:02] did you have an accident? [01:02] might as ewll take the bull by the horns and get it all up in there [01:02] nope, born with thiscondition [01:02] usually relapses come and go but not this time [01:02] you weren't in a wheelchair last i saw you [01:03] I was not [01:03] I had a relapse the first of June [01:03] I've been at home since [01:03] what is it, exactly? [01:03] I can walk a little bit but not far and not for very long without a lot of pain [01:04] no WAY could I be on my feet or walk around all day [01:04] I have had job interviews where a sign said do not enter and there was no were else to enter in the building and I lost it [01:05] is it something like reiter syndrome? [01:05] http://www.unckidneycenter.org/kidneyhealthlibrary/minimalchange.html [01:05] Title: [Minimal Change Disease] [01:06] I take huge amounts of Prednisone to help keep it in check [01:06] http://www.webmd.com/drugs/2/drug-6007-9383/prednisone-oral/prednisone-oral/details/list-sideeffects [01:06] Title: [Common and Rare Side Effects for prednisone oral] [01:08] all my life it has always gone into remission after starting Prednisone oral in about 10 to 14 days and the Drs taper me off the meds, life goes on [01:08] this time I've been on the meds for almost 7 weeks and I'm still spilling protein with severe adema (swelling) in the feet and ankles [01:09] I need a biopsy done and start thinking about serious life changes [01:10] the page you linked does not suggest it could be improved through lifestyle [01:10] it can't [01:10] it is what it is and that;s it [01:11] some lucky people outgrow it...I didn't [01:11] however, everyone knows health is better after quitting smoking [01:12] yeah BULLSHIT! Keeps me F*ing SANE! [01:13] Roguehorse: please don't use allcaps and cuss in here [01:13] yeah, sorry [01:14] anyway, the Prednisone really messes with my mood and psychology [01:14] like I didn't already need counseling [01:14] ianorlin: wHaT aBoUt CaMeL cAsE? [01:14] lets throw gas on a fire [01:14] * ianorlin has listening to a song within a song in a virtual machine [01:15] I know smoking is bad and I've almost quit [01:15] down to a pack a week [01:16] on theother hand I'm so shakey and irritable no one can stand to get near me and I really don't care either [01:17] snus helped a bit and I have an NJOY electric that helps too [01:19] and no, I'm not going to consider prescription pot ... I have a kid [01:19] not like cigarrettes are any better I guess [01:21] plus I probably wouldn't be able to write a lick of code on prescription pot...then I'd be completely doomed [01:21] tobacco and pot do very different things anyway, it's not like either could substitute for the other [01:21] the pot would help with the pain though...but acetaminophen works for me [01:22] plenty of people code decently on pot and still others can't without tobacci [01:22] the nicotein counters the Prednisone...at least for me [01:23] yeah, I go through a lot of coffee and smokes [01:23] acetominophen is usually pretty useless for me but i can't take much else in that category [01:25] dinner is up..gotta roll [01:30] I knew this time was coming all my life and that's why I went back to school to plan for it [01:31] I was hoping to be in a position by now that would be able to accomodate but no luck [01:32] now I'm on temporary MediCal and trying to deal with that [01:32] Ohlone dropped my Fall course so I have no job to go back to [01:32] I filed for SDI but I think I have to change that and file for unemployment [01:33] you can do both [01:33] oh, I thought I couldn't [01:34] it's possible, within limits [01:34] well, in my current state, unless some miracle comes around, I basically can't work anymore [01:34] unemployment assumes you not only can but are actively trying to [01:35] if that's not the case, it's barking up the wrong tree [01:35] well, I keep applying, and if they can keep me off my feet or provide wheelchair type access, maybe remote work, I "could" work [01:36] hence the possibility of both [01:36] It's not "impossible" for me to work, it's just really narrow conditions to accomodate [01:36] so that's where I'm at [01:37] disabilities do narrow the conditions no matter what they are [01:37] yeah, they do [01:38] sometimes so much that finding any opening within the conditions requires incredible luck [01:39] yeah, and what am I supposed to do for income while I keep looking? [01:39] and employment tends to depend on past employment [01:40] I was an instructor at Ohlone last [01:40] * ianorlin really prefers reporitng bugs to applying for jobs [01:40] lol! Yeah [01:41] if you manage to get ssdi, there are "employment networks" for recipients that basically supply accommodations externally to actual employers [01:42] ok, I don't know what that means [01:43] like if your regular wheelchair is insufficient for having a job and you need a different kind of wheelchair for it, they get you it [01:44] ah, ok, yeah ... probably going to want that [01:45] you'd need ssdi first [01:45] sad part is I'm going to have to think about replacing the mustang I guess ... it's long paid for though [01:46] and that means you need a total of at least ten years full-time employment in your past [01:46] don't know how I'm going to haul around a wheelchair [01:47] dude, I've been working since 1984 [01:48] when my better half was in a wheelchair, no automotive modification was needed, we just folded it up an put it in the back each time she got in the car [01:49] one with the big wheels I can do myself? [01:49] i had to do it for her of course [01:50] there is no way I can fit one of those in my trunk [01:50] it didn't fit in my trunk at the time either, hence "in the back" [01:50] grrrr...my head is hurting from all this...I'm going to go lay on the bed for a while [01:51] time to take my meds anyway [01:51] ttyl [04:31] I've got it! I can teach programming to the mobile challenged so they can work again [04:35] except that to get hired for remote jobs like that, one needs experience, not simply knowledge [04:36] just find a way through the edd center [04:37] I have a degree in SE and experience teaching [04:38] it's not about the teaching part, it's about utility to the students [04:39] if they don't have the experience, being taught something won't get them that job [04:43] yeah, the system would have to be able to hook that part up [04:44] there would have to be participating employers [04:45] I could probably hook something like this up [04:45] hmm? [04:46] when initiatives like this have been successful in the past, it was because they were initiated by the employers [04:47] http://www.roguehorse.com/index.html [04:47] Title: [Error reading title] [04:56] it's a thought anyway [12:56] when I go to my next Dr visit, I'm going to talk to him about the project .. maybe he can point me in the right direcion [12:56] Geez ... too many projects [15:47] there are a lot of good people, who like me, end up with challenges that force them to change careers and some employers are sympathetic to that [15:48] veterans and regular, everyday, people [15:51] I think it's a good goal and a doable thing...testing would have to be done becuase not everyone is going to have aptitude for programming or remote administration skills [15:52] but those who show the capability "could" be trained and be able to earn a living again [16:17] Roguehorse: I sure like your attitude, wanting to do something useful. I think it is great. I am sorry to hear that you are not well. [16:21] I try to think of positive projects that are beneficial to people, I like helping in that way, I like project management [16:22] yeah, I've lived with this condition all my life but this time around is a bit more serious [16:22] I guess my number wasjust finally up [16:23] was hoping to have both degrees done and a good job that I would still be able to do while sick [16:24] I can still finish my Masters, but Network Admin I think is out and MBA Project Management in [16:25] too bad, big need for Linux System Admins, but when your body is broke.....?? Who needs that guy [16:27] The job part is turning out to be more tricky than I thought too so I'm trying to think alternatively [16:30] I wish there were more jobs that were flex time/part time. There are so many talented people with issues that make them unable to work a 9-5x5 regular shift. [16:31] (even aside from physical limitations like lifting, crawling under desks etc.) [16:33] yeah, there are those places where one can put themselves up for bid but I've never tried them [16:33] it's hard to find a regular account with someone who will throw some consistant bones [16:34] I sure do understand how you guys feel as I have moderate adult ADHD and a lot of employers don't understand. [16:34] On the other hand, I work for an accounting and tax office and I am able to see into many different businesses, close up and personal like. [16:34] of course, what I really need is the insurance, that's even *harder* to find [16:35] Insurance in the US is such a terrible mess. [16:36] It is VERY hard for them to manage productivity when an employee is on again and off again. Everything is about productivity now. Productivity is money. If they are productive and can't respond fast they lose business and are then out of business themselves. [16:36] I get the adverts from the insurance companies to come work for them...might look [16:37] geom_: yep, pretty much [16:38] everything is JIT (just in time) [16:43] Most programming projects I've worked on have gone months or even years. It really wouldn't have mattered if someone had to have a few days off here and there. [16:46] There are such jobs out there, they are just hard to find. Mostly going to be done by referral and recommendation. Get lots of referrals relating to how you like to finish things, on time, from references. That will help. [16:48] I think the MeRML project is going to take a year or two to get into beta then it will be maintained for a long time [16:49] of course pushing it into other platforms is going to take a while too [16:52] We see a lot of people come around with these really "high tech" ideas using containers and microkernels etc..and they are cool [16:52] but I don't want to lose sight of the "average" person....the litttle end user [16:54] Hey guys, interesting discussion. [16:54] I have to go though. Got to get to the office. [17:27] yeah I have heard people call for more maintainers but how do you teach someone to be a maintainer? [17:27] I don't think computer science courses as I know, really cover that well and is something that quite important === pleia2_ is now known as pleia2